I was a teenager when my cousin Jordan was born. As Jordan grew from preschool to preadolescence I would observe her to be an endearing but demanding child. Jordan had a host of small idiosyncrasies that individually were minor but collectively made her a handful. It was not uncommon for Jordan to end up in her parents' bed or function on her own eating and sleeping schedule. I quietly wondered why this cantankerous little girl behaved the way she did. And silently I vowed not let my own child shape our days and nights with such command.

Through the years I continued to quietly build my portfolio of child rearing opinions. I wisely concealed my sometimes ignorant views. Nevertheless, I banked my thoughts. Nearly two decades after my cousin Jordan was born, I was blessed to birth my own child. Ten days after my son Watson's delivery, he began to exhibit colicky behavior. Watson's discontent seemed to increase rather than diminish as he turned 10 weeks and then ten months old. Watson never acclimated to a schedule. Feeding regimens were abandoned in pursuit of relief that only a bottle would provide. Attempts to implement sleeping routines failed as Watson awoke often and unhappy. At eighteen months he began vomiting when he became especially upset, which included bed time. My husband and I resorted to less than ideal sleeping arrangements in desperate search of rest. Most of my parenting choices went against any text book instruction. Coping was my goal.

Through Watson's first two years I experienced all the looks I recognized. Friends, especially those who were already parents, sometimes verbalized their body language by offering advice. It wasn't uncommon to receive a well-meaning but poignant email from a friend who had spent time with us and felt "led" to share their opinion on the problems. Parenting books frequently appeared in our mailbox. My feelings of inadequacy and embarrassment mushroomed.

I too had begun my parenting journey with the same goals and ideals as my friends. I read all the books and consulted my pediatrician until he was tired of seeing me. Watson seemed to struggle more than any book or friend could explain. I started avoiding acquaintances and social gatherings and especially if Watson was with me. I tried my best to keep our difficulty under wraps. And when pieces of reality escaped concealment, I would joke "I don't think he'll serve prison time over" and I would fill in the blank with "bottles after age one," "crazy sleeping arrangements," or "his lack of schedule." I smiled through many hard conversations as I listened to unasked for and usually uninformed advice. In the meantime, I felt something must be wrong with my child.

Just as Watson turned two I was nearing an emotional and physical breakdown. During a church small group gathering I candidly shared and cried. I was exhausted. I started my long diatribe with: "Please don't give me advice. There is nothing I haven't already heard or tried." The women listened without judgment and then prayed for me. The next morning one of the ladies from the small group called me to say "you are not crazy." She explained that she was a pediatric occupational therapist and asked if I had ever heard of sensory integration disorder. She recognized Watson's challenges and peculiar habits as possible signs of this neurological disorder.

For the following months we slowly walked a course leading to answers and relief. My occupational therapist friend assisted in obtaining a referral and diagnostic assessment. Watson was soon formally diagnosed with the sensory seeking type of sensory integration disorder. Simultaneously he was diagnosed with sleep apnea as well as being severely lactose intolerant. After a change of diet, intense occupational therapy, a formal sleep study and ensuing tonsillectomy, our lives changed dramatically. Within six months of my occupational therapist friend's phone call, Watson slept in his own bed through the night and lost a whole host of bad habits. His regular daytime behavior changed noticeably. Our life began to feel manageable.

Days after Watson's S.I.D. diagnosis, my aunt, Jordan's mother, called me. She explained Jordan grew up with what today would be recognized as S.I.D. as well as severe allergies. My aunt and I laughed and cried as we compared notes and understood each other in a way we knew few others would. And I felt tremendous hope. Jordan was now an accomplished, college bound freshman who was very possibly one of the most enjoyable people I knew! Indeed, maybe my precious son would avoid prison, as I had joked for the past year!

Now at age four, Watson is a happy and healthy preschooler. He is a different child. And since overcoming over two years of sleepless chaos, I am a different friend! My patience is longer with most people in my life, and especially other moms. Recently while in a mall I observed a mother gingerly handle her preschooler daughter's temper tantrum. I caught myself forming judgment on this mother's parenting. I quickly reminded myself that I didn't know what battles had been fought earlier in the day or what developmental obstacles the child may possess. Not too long ago I passively handled mad-fits in order to prevent Watson from vomiting. I reflected and offered a silent prayer as I watched this mother from afar. If there was one, key learning in my hardship with my son, it was that judgment is fruitless. I now make a point not just to conceal an opinion but not to form one at all! Most parents in my circles are bright, independent, and informed people. They know conventional wisdom and genuinely care for the well-being of their children. What they need most from me are prayers and compassion, not opinions or advice.

Originally posted on AtlantaAreaMommies.com

Childbirth, we all pray for it to be easy, but I was one of the not-so-lucky ones. I had a long and painful labor, my son was stuck against my pelvic bone for hours, and when he was finally suctioned out, his head was severely misshapen. Many kids come out with crooked heads, isn’t this what that hoodie in the hospital is for? “Give it a few weeks, the doctors say”. Well, I gave it a few months, and the condition only got worse. My son developed severely restricted head and neck movement, which in turn resulted in hearing problems and infections that we are still dealing with 18 months later.

So what is this called? The condition is called plagiocephaly, Greek for “an oblique head”; plagiocephaly results from external forces applied to a soft and malleable infant skull. This can be the result of childbirth, but can also develop from a number of external circumstances such as sleeping on the back with little tummy time, or only turning the head in one direction due to torticollis (restriction of the neck muscles), and prolonged use of an infant car seat, carrier, or swing (perhaps due to reflux). Whatever the case, many of us are mistakenly told by our pediatricians that the asymmetry will fix itself. However, in moderate or severe cases, this is untrue. Sure, the child’s hair will grow and perhaps the deformity will be slightly camouflaged, but this condition is not one that is self-correcting.

So what does this mean? Many people, including some insurance companies, also believe that plagiocephaly is merely a cosmetic problem. This is not the case, facial asymmetry can cause eating and chewing problems, vision problems, and in my son’s case, hearing problems and ear infections. This is a medical condition, and one that as parents, we should probably be aware of. Well, we all know that babies need to sleep on their backs and ride in infant carriers while in the car, so what treatments are available to assist in correcting the head shape? The child will most likely have to wear a custom-fit helmet or band for 23 hours a day for several months to correct the problem. The helmet, though it looks obtrusive, is quite lightweight and rarely bothers the child. My son actually cried when we took his off! The specialist will cast a mold of the child’s head to develop a band for the child that will slowly correct the deformity through constant pressure. The band will be adjusted weekly to accommodate growth and development. Many children are treated after two or three months, though some will wear their head accessory for as long as six months. Treatment is most successful if started between 4 and 6 months; however, a child can start treatment at as late as 18 months. Additionally, physical therapy is also affective in reinforcing the treatment.

So, the next time you see a child running around in a white or painted helmet that looks like they may be a baby wrestler or football player, you will now know that that child is being treated for plagiocephaly. And moms and dads, if this happens to your child, please learn the facts, know that this is a medical condition and does require attention, but also know that it can be treated without painful or intrusive surgery, and most important, know that this is not your fault. Let’s educate one another, our doctors, and our insurance companies. Stay aware of your child’s development and be proactive in his treatment. And hey, look at the bright side, I was actually thankful during a few baby tumbles that my child was well protected in his headgear! And the bands are a great way for your child to express his individuality.

For more information, please visit http://www.cappskids.org or http://www.cranialtech.com.

{Originally posted on RichmondMommies}

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